My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri

There is help people I have been using medical marijuana on the advice of my NeroSurgeon. He is stumped and I continue to be a mystery - I have had this condition for 9 years and I should have lost my eyesight years ago. I can function normally providing i take this medicine twice a day. Please ask your doctors about this type of treatment. I was allergic to all meds such as Diamox, and everything else they could come up with. I lost weight and now it's under control 90% of the time. I still get vertigo from this and I have no shunt or surgeries ever. I understand it's not for everyone but if you are like me this may help. I thank god I was given medical clearence for this because it has saved my life! PS I live in Canada and it's more accessible here.

i was diagnosed with BIH in jan 05 and had all the regular symptoms and was put on diamox and bendroflumethazide and regular lumber punctures helped although by the end of 2007 i was having lumber punctures every 3 weeks so my neurologist referred me 2 a neurosurgeon and i had a shunt fitted in march this year and all has been well since until 3 weeks ago wen my headaches returned and after more lumber punctures a xray showed my shunt had moved to my pelvis, the docs wernt too worried and have left it as they said it would cause more problems to remove it but they have put a new shunt in last week and im recovering fine. i have had 22 lumber punctures and 2 operations to help and they all do but i hope this shunt will not move again.

BIH MY STORY MY 13 YEAR OLD DAUGHTER WAS DIAGNOSED WITH BIH TWO MONTHS AGO. IT ALL STARTED ONE MORNING WHEN SHE WAS GETTING READY FOR SCHOOL SHE BLACKED OUT AND HAD A FIT. EVER SINCE THEN SHE HAS HAD A PERMENANT HEADACHE AND PAIN DOWN HER SPINE. SHE 'S VERY LUCKY HER EYES HAVE NOT BEEN AFFECTED SO FAR , I HOPE IT STAY'S THAT WAY . SHE HAD AN MRI STRAIGHT AWAY TO RULE OUT A TUMOUR, THAT WAS CLEAR THEN SHE HAD A LUMBER PUNTURE THAT TOLD THE PRESSURE WAS THROUGH THE ROOF. SHE JUST HAD ANOTHER LP WHICH WAS THE SAME SHE WAS PUT ON ACLOZOLIMIDE OR SOMETHING TO THAT NAME BUT IT HAS NOT WORKED PRESSURE STILL VERY HIGH . NOW I'M JUST WAITING ...  Read the complete review

I was recently diagnosed with benign intracranial hypertension. its a very rare disease. only 0.9 out of 100,000 have this condition. its basically excess fluid around the brain thats not flushing out from the body. i am awaiting for a letter to come from the hospital to tell me wots has to happen next which i am not looking forword too. i also had to have a mri scan 3 days ago which wasnt pleasant either as i am closdofobic so it was very difficult for me. i found out i had this condition after i went for a regular check-up at the opticians, i knew something was wrong cos i was in there for a while and had other opticians coming to have a look. he referred me straigh to ...  Read the complete review

It all started with the headaches for me. Until about 4 months ago I maybe had 2 very mild headaches a year. I'm only 20 and never had anything wrong with my health. 4 months ago I started getting mild headaches when I was tired or stressed. This was weird because I never had that before and I was a bit worried but just thought maybe I was stressed (even though I look back now and I was not anymore stressed at all). After two months of these headaches I had a stomach bug for a few days and with it came a worse headache and extremely mild vision disturbance which I just ignored. Over the next month the headaches were on and off and varied in ...  Read the complete review