My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri Reviews
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My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri ... information and resources in addition to personal experience. They will not be considered for crown awards unless they fulfill all three criteria.
Newest Review: ... the Sunday (the 4th) The pain graduated to pain , pressure and vomitting and blurred vision , so straight to the emergency department. It was very busy with a 4 hour wait. I saw the triage nurse who said my heart was racing probably due to the pain. She then said she was bleep the on call Opician from home... He got to the hospital within 20 minutes and looked over the opticians letter then ... more
Customer My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri Reviews (16)
by - written on 24/09/11 (Very useful, 165 readings)
Well.. let me take you to you back to when all this started. All my teenage life I have suffered with migraines which doctors associated with my PCOS (Poly cystic ovarian syndrome) I took regular pain killers for these. Then in Augest 2011 These "migraines" got WORSE a hell of a lot WORSE. I had servere pressure behind my right eye to the point I would break down in tears , I went to my local Gp who gave me more Migraine relievers and preventers. Little did I know this would begin to mask a serious problem. By September the 3rd I went to the optician thinking , Okay maybe I need glassess, eye strain can cause headaches.. I went in and done the usual ... Read the complete review
by laurie R - written on 24/08/09
There is help people I have been using medical marijuana on the advice of my NeroSurgeon. He is stumped and I continue to be a mystery - I have had this condition for 9 years and I should have lost my eyesight years ago. I can function normally providing i take this medicine twice a day. Please ask your doctors about this type of treatment. I was allergic to all meds such as Diamox, and everything else they could come up with. I lost weight and now it's under control 90% of the time. I still get vertigo from this and I have no shunt or surgeries ever. I understand it's not for everyone but if you are like me this may help. I thank god I was given medical clearence for this because it has saved my life! PS I live in Canada and it's more accessible here.
by lynne campbell - written on 11/08/08
i was diagnosed with BIH in jan 05 and had all the regular symptoms and was put on diamox and bendroflumethazide and regular lumber punctures helped although by the end of 2007 i was having lumber punctures every 3 weeks so my neurologist referred me 2 a neurosurgeon and i had a shunt fitted in march this year and all has been well since until 3 weeks ago wen my headaches returned and after more lumber punctures a xray showed my shunt had moved to my pelvis, the docs wernt too worried and have left it as they said it would cause more problems to remove it but they have put a new shunt in last week and im recovering fine. i have had 22 lumber punctures and 2 operations to help and they all do but i hope this shunt will not move again.
by - written on 01/03/08 (Useful, 698 readings)
BIH MY STORY MY 13 YEAR OLD DAUGHTER WAS DIAGNOSED WITH BIH TWO MONTHS AGO. IT ALL STARTED ONE MORNING WHEN SHE WAS GETTING READY FOR SCHOOL SHE BLACKED OUT AND HAD A FIT. EVER SINCE THEN SHE HAS HAD A PERMENANT HEADACHE AND PAIN DOWN HER SPINE. SHE 'S VERY LUCKY HER EYES HAVE NOT BEEN AFFECTED SO FAR , I HOPE IT STAY'S THAT WAY . SHE HAD AN MRI STRAIGHT AWAY TO RULE OUT A TUMOUR, THAT WAS CLEAR THEN SHE HAD A LUMBER PUNTURE THAT TOLD THE PRESSURE WAS THROUGH THE ROOF. SHE JUST HAD ANOTHER LP WHICH WAS THE SAME SHE WAS PUT ON ACLOZOLIMIDE OR SOMETHING TO THAT NAME BUT IT HAS NOT WORKED PRESSURE STILL VERY HIGH . NOW I'M JUST WAITING ... Read the complete review
by - written on 25/10/05 (Very useful, 1462 readings)
It all started with the headaches for me. Until about 4 months ago I maybe had 2 very mild headaches a year. I'm only 20 and never had anything wrong with my health. 4 months ago I started getting mild headaches when I was tired or stressed. This was weird because I never had that before and I was a bit worried but just thought maybe I was stressed (even though I look back now and I was not anymore stressed at all). After two months of these headaches I had a stomach bug for a few days and with it came a worse headache and extremely mild vision disturbance which I just ignored. Over the next month the headaches were on and off and varied in ... Read the complete review