my experience living with bih (My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri)

Member Name: lisa71

Product:	My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri
Date:	23/02/05 (211 review reads)
Rating:

Advantages: none

Disadvantages: days with pain, having to rely on medication for the rest of my life

I first new something wasnt right when i was 19,i began to have the most painful headaches.For 4 weeks i put it down to being a young mum who was over tired.Then i was shopping in my local centre when i felt dizzy,and had the most searing pain through my head from front to back and behind my eyes.I almost collapsed.Iwent straight to the doctors the first one i saw,gave me paracetomol,i did try to tell her that i had tried everything in the chemist but nothing worked,she told me to go home and rest.I wasnt happy so i made another appointment to see another doctor the next day.I told her my symptoms she looked into my eyes and told me that she thought i had a brain tumour and that i had to go to the hospital immediately.I went and they thought it was menengitis as by the time i got there i was unable to lift myself of the bed or move my eyes without screaming in pain.For 3 weeks i was passed from hospital to hospital in severe pain,until i ended up at our local general where they had a neuro ward,once they assessed my symptoms they told me what i had.Since then i have had every shunt possible even a trial one was tried but it didnt work.I have had my latest shunt in for 6 years now and it seems to be ok,i am just gled that at the moment i dont have to endure any more lumbar punctures as they are the most painful thing to go through.

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