my story (My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri)

Member Name: kiteboarding12

Product:	My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri
Date:	04/07/05 (604 review reads)
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My story starts September 2003. I could not see when I drove at night. I went to see my eye doctor. He told me that my optic nerves are swollen and this is a symptom of a brain tumor. He immediatly made an appoitment with an optamologist within a week. He sent me to a neurologist. She ordered a lumbar puncture. I don't remember what my opening pressure was there was so much going on in such a short amount of time. I had 3 MRIs. After all that my optamologist said that I have PTC. He took a very slow approach to my treatment. I was not put on any meds until 1 1/2 years later. He put me on Diamox 1000 mg a day. My vision is not doing as well. It is slowly declining. I can tell each time I take the test. My headaches are not that severe but I have alot of other side effects. Between the disease and the diamox I didn't know which was from which. About 1 week ago my optamologist said my vision test is getting worse. He said that we would have to think of surgery soon. Well now I know that this is serious. I didn't think it was by the way he was acting. So I have learned more about PTC in the last week then the whole time I have been diagnosed.

Summary: knowledge