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My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri 

Newest Review: ... READY FOR SCHOOL SHE BLACKED OUT AND HAD A FIT. EVER SINCE THEN SHE HAS HAD A PERMENANT HEADACHE AND PAIN DOWN HER SPINE. SHE 'S VERY LUC... more

My Experience With Benign Intercranial Hypertension (My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri)

babychamfizz

Member Name: babychamfizz

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My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri

Date: 04/07/05 (597 review reads)
Rating:

Advantages: finally a correct diagnosis was given

Disadvantages: it took far to long to be diagnosed

In 1995, I started getting really severe headaches on a daily basis, but they were more severe at night as I lay in bed, so severe in fact that I really thought my brain was going to burst,I began taking ordinary painkillers bought from the chemists, these ranged from paracetamol, ibuprofen, and stuff like 'Migraleve'etc.

My doctor sent me to my local A & E department to be checked over, they were at first treating me for 'whiplash' and put me in a surgical collar,and sent me home, but it didn't work, so I was sent back to A & E, this time was admitted for observation and tests, these tests included x-rays, and I was given a range of 'suspected' diagnosises like 'water on the brain' meningitis, and even a suspected brain tumour, after a week I was discharged from hospital yet again with no accurate outcome, by this time I was in severe pain, was vomitting and my sight just went, completely, which was absolutely terrifying,finally I was admitted to hospital again and had more intensive tests like CT & MRI scans and worse of all, lumber punctures, which were agonising, I was in hospital a total of 13 weeks, and benign Intercranial Hypertension was at last diagnosed. am on regular medication now and am doing fine.

Summary: it took time, but at last I was given a proper diagnosis

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Last comment:
catcarr

- 27/03/08

I have been treated for BIH for the past 16years and have a shunt inserted in my abdomen. I had to have the shunt replaced a year ago as my headaches and nausea came back with a vengeance. Since then I have had an excrutiating pain around the area where the shunt was sited. After an ultrasound scan they discovered I have a cyst at the tip of my shunt.The general surgeon won;t do anything about it since he thinks it's related to my shunt. I went 3 weeks ago for a lumbar puncture but because of the scarring on my back from previous operations no spinal fluid could be measured or taken. I am now waiting for an appointment with the radiographer to have the lumbar puncture done by xray. I am quite scared about this but it has to be done so the doctors can treat my illness.


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