MY DAUGHTER HAS BIH (My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri)

Member Name: kaz1405

Product:	My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri
Date:	01/03/08 (451 review reads)
Rating:

Advantages: THAT COULD HELP OTHER KIDS

Disadvantages: YOU CAN'T DO ALOT

BIH MY STORY

MY 13 YEAR OLD DAUGHTER WAS DIAGNOSED WITH BIH TWO MONTHS AGO.
IT ALL STARTED ONE MORNING WHEN SHE WAS GETTING READY FOR SCHOOL SHE BLACKED OUT AND HAD A FIT.
EVER SINCE THEN SHE HAS HAD A PERMENANT HEADACHE AND PAIN DOWN HER SPINE. SHE 'S VERY LUCKY HER EYES HAVE NOT BEEN AFFECTED SO FAR , I HOPE IT STAY'S THAT WAY
.
SHE HAD AN MRI STRAIGHT AWAY TO RULE OUT A TUMOUR, THAT WAS CLEAR THEN SHE HAD A LUMBER PUNTURE THAT TOLD THE PRESSURE WAS THROUGH THE ROOF.
SHE JUST HAD ANOTHER LP WHICH WAS THE SAME SHE WAS PUT ON ACLOZOLIMIDE OR SOMETHING TO THAT NAME BUT IT HAS NOT WORKED PRESSURE STILL VERY HIGH . NOW I'M JUST WAITING TO GO TO ADENBROOKES KIDS HOSPITAL THIS WEEK TO SEE THE NUROLIGISTS THERE TO SEE WHAT THEY CAN DO FOR HER.
HERE'S HOPING XXXXXXXXXXXXX

Summary: HOPE THIS HELPS ANYONE