BIH/A Painfull Journey (My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri)

Member Name: jestastar

Product:	My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri
Date:	21/05/03 (747 review reads)
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Disadvantages: Complete Disadvantage

First came the numbness, a tingling sensation down one side of his face. His speech was slurred and his vision disturbed.Then the final piece of this far too often occurance, A pounding headache draining every little bit of energy, intervals of sickness, and then a long sleep. Only to wake up to find the Pain still presant. These were the events that led to the diagnosis of Benign Intercranial Hypertension. also present was Papilla Odema, The pressures had gone so high that they had started to fill up the disc at the back of the eye,. Then the treatment began Lumbar Punches, In order to find out just how high the pressure was in the head, I was told it was 40, and that normal pressures were about 10.They were able to drain some CSF(Cerabal spinal fluid)but in order to keep the pressure down the procedure needed to be repeated and it was, every fortnight. Also medication was described to help keep the fluid down. This is called Accetazolomide it is given in this case every eight hours, at a dose of 2x500mg tablets, It can sometimes cause tingling in the fingers at high doses, but I am told that taking Bicarbonate of soda in a glass of water helps with this simptom. Anyway seven Lumbar punches Later and the use of Accetazolamide the situation seems to be under control, for the moment at least, And having missed almost a year off school through this illness I am pleased to say that he can now return, You see all the above are the exsperiences of my child who has enduerd so much, But that is another story!

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