My Experience of Benign Intercranial Hypertension/Pseudotumor Cerebri Reviews

There is help people I have been using medical marijuana on the advice of my NeroSurgeon. He is stumped and I continue to be a mystery - I have had this condition for 9 years and I should have lost my eyesight years ago. I can function normally providing i take this medicine twice a day. Please ask your doctors about this type of treatment. I was allergic to all meds such as Diamox, and everything else they could come up with. I lost weight and now it's under control 90% of the time. I still get vertigo from this and I have no shunt or surgeries ever. I understand it's not for everyone but if you are like me this may help. I thank god I was given medical clearence for this because it has saved my life! PS I live in Canada and it's more accessible here.

i was diagnosed with BIH in jan 05 and had all the regular symptoms and was put on diamox and bendroflumethazide and regular lumber punctures helped although by the end of 2007 i was having lumber punctures every 3 weeks so my neurologist referred me 2 a neurosurgeon and i had a shunt fitted in march this year and all has been well since until 3 weeks ago wen my headaches returned and after more lumber punctures a xray showed my shunt had moved to my pelvis, the docs wernt too worried and have left it as they said it would cause more problems to remove it but they have put a new shunt in last week and im recovering fine. i have had 22 lumber punctures and 2 operations to help and they all do but i hope this shunt will not move again.

BIH MY STORY MY 13 YEAR OLD DAUGHTER WAS DIAGNOSED WITH BIH TWO MONTHS AGO. IT ALL STARTED ONE MORNING WHEN SHE WAS GETTING READY FOR SCHOOL SHE BLACKED OUT AND HAD A FIT. EVER SINCE THEN SHE HAS HAD A PERMENANT HEADACHE AND PAIN DOWN HER SPINE. SHE 'S VERY LUCKY HER EYES HAVE NOT BEEN AFFECTED SO FAR , I HOPE IT STAY'S THAT ...  Read the complete review

I was recently diagnosed with benign intracranial hypertension. its a very rare disease. only 0.9 out of 100,000 have this condition. its basically excess fluid around the brain thats not flushing out from the body. i am awaiting for a letter to come from the hospital to tell me wots has to happen next which i am not looking forword too. i also ...  Read the complete review

It all started with the headaches for me. Until about 4 months ago I maybe had 2 very mild headaches a year. I'm only 20 and never had anything wrong with my health. 4 months ago I started getting mild headaches when I was tired or stressed. This was weird because I never had that before and I was a bit worried but just thought maybe I ...  Read the complete review

In 1995, I started getting really severe headaches on a daily basis, but they were more severe at night as I lay in bed, so severe in fact that I really thought my brain was going to burst,I began taking ordinary painkillers bought from the chemists, these ranged from paracetamol, ibuprofen, and stuff like 'Migraleve'etc. My doctor sent ...  Read the complete review

My story starts September 2003. I could not see when I drove at night. I went to see my eye doctor. He told me that my optic nerves are swollen and this is a symptom of a brain tumor. He immediatly made an appoitment with an optamologist within a week. He sent me to a neurologist. She ordered a lumbar puncture. I don't remember what my ...  Read the complete review

As a sufferer of idiopathic intracranial hypertension (IIH), one of the many names this disease has been given, I find that benign is very far from accurate and misleading when describing the debilitating effects of this disease. As is all too common with IIH, I had frequent headaches as a young girl. As a young adult the headaches became ...  Read the complete review

I first new something wasnt right when i was 19,i began to have the most painful headaches.For 4 weeks i put it down to being a young mum who was over tired.Then i was shopping in my local centre when i felt dizzy,and had the most searing pain through my head from front to back and behind my eyes.I almost collapsed.Iwent straight to the doctors ...  Read the complete review

I recently found out that I had benign intracranial hypertension. I had always suffered headaches but in the past year or two they became so severe that I had to come home from work and lie down for hours just to get rid of them, sometimes I would go to bed at night with one and wake up the next morning and I would still have a headache. No ...  Read the complete review

It all started with a headache, however these gradually got worse. I was taken to my GP, who prescribed migrane tablets (because there is migrane sufferers in my family) But, these didn?t seem to help, so my GP prescribed stronger medication. They still had no effect, in fact my headaches where getting worse and they were there every day. I am ...  Read the complete review

Benign Intercranial Hypertension Hannah?s Story For me it all started with the headaches, mild headaches behind my eyes and at the back of my head that never seemed to go away. Over a two month period the headaches began to grow is severity. Although at this point, I did not feel they were enough to go to the doctors. During the time ...  Read the complete review

before i got B.I.H i was normal. just like everyone else, i went out at weekends drinking and stuff. now i cant drink alcohol or go to work either, all because of this disease and im only 22. when it all started id just got a new job and had been working there for about three months. then i started to get headaches. at first i thought they ...  Read the complete review

First came the numbness, a tingling sensation down one side of his face. His speech was slurred and his vision disturbed.Then the final piece of this far too often occurance, A pounding headache draining every little bit of energy, intervals of sickness, and then a long sleep. Only to wake up to find the Pain still presant. These were the events ...  Read the complete review

Benign Intercranial Hypertension - Advantages: None - Disadvantages: Everything

Have you ever been afraid? Have you ever had something happen to you that was completely out of your control? Have you ever lost something so precious to you that you thought you would die? Have you ever had your life spiraling out of control and you could do nothing to stop it? Let me tell you a story about a time in my life when I ...  Read the complete review

Benign Intercranial Hypertension Benign intercranial Hypertension is otherwise known as Pseudotumor Cerebri, when referring to the illness most doctors would refer to it as BIH or PTC for short. Many people have asked me what it is, it's a very complicated and rare illness, it's not very easy to understand it all, however I ...  Read the complete review