My Experience of Motor Neurone Disease Reviews

Description:Please only write here of you have had a direct experience of this condition
Newest Review: ... without any doubt, that a train is coming straight at you, and there is nothing you or anyone else can do, to get out of the ... more
Customer My Experience of Motor Neurone Disease Reviews (4)

by - written on 29/01/11 (Very useful, 11 readings)
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If you, or someone you love, has recently been diagnosed with MND - this is not the place for you. The fact is that this disease is simply the worst. Not because it is more physically painful. Not because of what it does to you. But because there is no hope. Not a single word of comfort to offer the sobbing victim. Not one word you can say to help her get through each day. You can't take each day as it comes. Because you know, without any doubt, that a train is coming straight at you, and there is nothing you or anyone else can do, to get out of the way. With cancer, another terrible disease, there is always a plan. ... Read the complete review

by - written on 04/11/09, updated on 30/11/09 (Very useful, 112 readings)
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Where do I begin? how do I start writing about a illness that is so devastating that it has come into my family and has left each of its members broken hearted, How can I begin to put into words how this nasty and aggressive disease is emotionally tearing me apart,.Hence me writing about it at 4 in the morning because I am so frightened of the thoughts that run through my mind, about what is going to happen that I have lost the ability to switch off and relax. Maybe the best place to start would be to go back to the very beginning. In order to give you a better insight into this monster of a disease. My dad, is 54. I was born when he was 21, so in some respects ... Read the complete review

by - written on 17/08/08, updated on 25/01/10 (Very useful, 130 readings)
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My Experience of Motor Neurone Disease.... MND is a rare condition affecting around 1 in 100,000 people at one time. It is more common in men than in women and again more popular in people aged over 50. There are 3 different types of MND but the most common form is a rapidly progressing muscle wasting disease affecting the motor neurones. The diagnosis of MND is more a case of eliminating other possible causes of the symptoms the patient is suffering form. The prognosis of the most common type of MND is between 2-5 years with most people dying closer to the 2-year mark. MND is basically a muscle wasting disease that takes muscle after ... Read the complete review

by - written on 25/10/01, updated on 25/10/01 (Very useful, 80 readings)
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I don't know what to write. Motor Neurone Disease. Killer of my grandfather. It's sick to think that he died with a disease that affected what he loved to do most. It's been 2 years so far since the problem. He loved to paint. Anybody who is interested in painting, specifically marine water colours and oils, may of heard of him. You might even have a painting of his on your wall. Think of the thing that you love most about living, then think about what would happen if a disease took that away from you. The thing that you love doing most, just stops and you'll never be able to do it again. Scared? After a relative dies only a few months after a diagnosis .. Read the complete review
