My Experience of Reis-Bucklers Corneal Dystrophy

I have suffered from Reis-Bucklers' Dystrophy all my life. I am 49 and my first memory of this condition is after being poked accidently in the eye when I was 4 I was in intense pain and could not open my eyes. I have been told that my maternal great grandfather suffered from this condition, he lived in a small village in Wales before the advent of the NHS. The only relief was to lie in a darkened room and his eye would be bathed in milk, after a number of days he was able to open his eye. My grandmother, aunt and mother, 1 cousin, suffer from this terrible condition. I have 3 daughters and my eldest is the only sufferer. We have all been patients at St Pauls Eye ...  Read the complete review

Hi Linda, My name is Karl. I was diagnosed with Reis Bucklers also. I had 15 eye accidents until finally I was diagnosed with the distraphy when i was four or five. Most of the cases were thought to have appeared as a result of parents somehow being distantly related but more recently they have discovered that thankfully it can be caused by a geneticly dificient chromsone when we were born but it does not mean that I will pass it on but yes there is a chance. For instance none of my parents were found to have the disease or any of my 4 siblings which were all screened....There is a more likely chance however that I will now pass it on to my kids but again its ...  Read the complete review

Hi, my name is Barb and I'm from Chicago. I am 49 years old and was diagnosed with Reis-Bucklers at the age of 11. I have had 3 cornea transplants since then...most recently February 2007. You need to see a cornea specialist as most eye doctors won't know what they're looking at much less being able to diagnose it. It cannot be treated with lasers and there is no cure. If I can help you in any way please feel free to contact me. I still get pain and watering in both my eyes and it sucks! There are eyedrops available to soothe some of the symptoms but sometimes I just have to close my eyes for 15-20 minutes. Not easy to do at work! Don't worry about your child. His father would also have to have the disease for your kids to get it.

Reis Bucklers Corneal Dystrophy. Considering I have this condition, I have very little knowledge of it. This being mainly because of a lack of communication with my specialists, but also due to lack of information available (believe me I have tried!) what I do know about Reis Bucklers is that it is an hereditary eye condition that is extremely rare. I was told that it is not normally diagnosed until the twilight years. Mine was spotted at the tender age of fourteen, although I displayed classic symptoms from as young as five. I was at the time one of only a hundred in the UK to have this condition and the youngest. Reis Bucklers is a degenerative condition ...  Read the complete review