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Support and ActivitiesCharities and organisations, community and youth associations, social services, support groups, other things to do for entertainment, local authorities support, financial assistance, sports/recreation facilities, play and leisure opportunities, aids and equipment, transportation, technical assistance, independence, health services, counselling, mobility, childcare to meet your needs, respite/short term care, playschemes, legal rights, raising awareness, transportation and more.... Newest Review: ... with a rare CHD called pulmonary artery sling. I found out soon that the mortality rate is very high in the first few months of life. But surrounded by cardiologists and cardiac surgeons, I knew we were in good hands. After further testing and scanning, they could see he had a malrotation of his intestines, that needed repairing before too long. he was operated for that at the day he was 2 ... more |
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by tpcthyra - written on 02/12/01 (Very useful, 107 readings)
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3 months ago, I gave birth to a special little boy called Noah Sebastian. Noah is not like other little boys. Noah is unique. In my womb, he was diagnosed with a congenital heart defect. They said he might have chromosomal abnormalities. I was offered an amniocentesis, but declined, knowing I would never terminte in any case. Noah was born after 7 hours in labour, induced at Guys Hospital in London, on August 24th 2001. After a quick cuddle, he was whisked away. Shortly after, I was told he had hand contractures and rocker bottom feet, and his willie had a funny shape. But hey, he was breathing and that was all I cared about. After 2 days in NICU, he was ...
by writer29 - written on 28/11/01 (Useful, 84 readings)
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I have a three year old daughter who was diagnosed with Cerebral Palsy at 22 months. I had known that there was something wrong with Keisha the day she was born, but no-one would listen to me. She would twitch intermittently from birth. That was the only sign of something wrong until she came off breast milk onto formula when I went back to work when she was 6 months. The change was instant. She was suffering from chronic constipation. It was absolutely heartbreaking. The first time it happen, I didn't know what was going on. When I told my health visitor she told me I must have reduced her fluid intake despite the fact that I was almost screaming at her ...



