Support and Activities Reviews
Description:Infomation, support and ideas for children with disabilities and the parents and families of children with ... more
Support and Activities ... disabilities.
Charities and organisations, community and youth associations, social services, support groups, other things to do for entertainment, local authorities support, financial assistance, sports/recreation facilities, play and leisure opportunities, aids and equipment, transportation, technical assistance, independence, health services, counselling, mobility, childcare to meet your needs, respite/short term care, playschemes, legal rights, raising awareness, transportation and more....
Newest Review: ... with a rare CHD called pulmonary artery sling. I found out soon that the mortality rate is very high in the first few months of life. But surrounded by cardiologists and cardiac surgeons, I knew we were in good hands. After further testing and scanning, they could see he had a malrotation of his intestines, that needed repairing before too long. he was operated for that at the day he was 2 ... more
Customer Support and Activities Reviews (2)
by - written on 02/12/01, updated on 03/12/01 (Very useful, 110 readings)
3 months ago, I gave birth to a special little boy called Noah Sebastian. Noah is not like other little boys. Noah is unique. In my womb, he was diagnosed with a congenital heart defect. They said he might have chromosomal abnormalities. I was offered an amniocentesis, but declined, knowing I would never terminte in any case. Noah was born after 7 hours in labour, induced at Guys Hospital in London, on August 24th 2001. After a quick cuddle, he was whisked away. Shortly after, I was told he had hand contractures and rocker bottom feet, and his willie had a funny shape. But hey, he was breathing and that was all I cared about. After 2 days in NICU, he was ... Read the complete review
by - written on 28/11/01, updated on 08/12/01 (Useful, 88 readings)
I have a three year old daughter who was diagnosed with Cerebral Palsy at 22 months. I had known that there was something wrong with Keisha the day she was born, but no-one would listen to me. She would twitch intermittently from birth. That was the only sign of something wrong until she came off breast milk onto formula when I went back to work when she was 6 months. The change was instant. She was suffering from chronic constipation. It was absolutely heartbreaking. The first time it happen, I didn't know what was going on. When I told my health visitor she told me I must have reduced her fluid intake despite the fact that I was almost screaming at her ... Read the complete review