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Worster Drought Syndrome

Newest Review: ... that I need to tell you a little bit about my son. He was born 7weeks early in 1998, and spent a couple of weeks in the ... more

... special baby unit before coming home at 2.5 weeks old. Seemed like bliss, but at 5 weeks old he died in my arms, and I mean that he stopped breathing and his heart stopped. luckily I was somewhere where their were first aiders and he was resucitated. So he spent a week in high dependency on O2 and we were told he had no lasting effects. However he came home on an apnea monitor, and this would often go off as he forgot to breathe, he also developed a very dramatic reflux (this means he projectile vomited after every bott...more

Read Reviews for Worster Drought Syndrome

Worster Drought Syndrome: Life with WDS (872 words)
by sandemp - written on 21/02/05 (Very useful, 1244 readings)
Rating:

I thought I'd write this review in the hope that it will help stop a parent going through the years of struggle to get a diagnosis as we did. So I hear you saying "What is Worster-Drought Syndrome??" Well we'll get the medical jargon bit over before I explain how it affects my son and the long road we had to get the diagnosis. Worster-Drought (WDS) is a little known and underdiagnosed form of cerebral palsy. It presents as mild tetraplegia (all four limbs are mildly affected), with marked oro-motor difficulites (that is the mouth, tongue and swallowing muscles don't work properly). WDS is a complex condition, the ...

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