
Newest Review: ... to come from their mouth along with their saliva. They can also drain of colour in the face and go clammy to the touch. If the seizure... more
Good advice and help for everyone living with epilepsy
British Epilepsy Association

Member Name: Anne Lloyd
Product:
British Epilepsy Association
Date: 23/05/06
Rating:
Advantages: Good helpline and useful literature
Disadvantages: Whilst experienced the helpline staff can only advise they are not medically trained
Diagnosed as an epileptic at 19 (now 39)I have used
information by the BEA for years -
I have always found it to be both useful
and up-to-date, which is important because
there are many legal restrictions for people with epilepsy
(eg jobs you take up and driving regulations).
Before me they helped my mother come to terms with my
condition and recently I wondered if my young child has
developed the condition, the helpline was helpful,
reassuring and comforting, and they have sent me some
information on childhood disorders.
Their one downside is that they can be a little too
tenacious when they are fundraising.
Summary: Helpful, up-to-date and helpful telephone manner
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