“ Connective tissue is formed differently allowing the joints, muscles, tendons, ligaments to stretch or move farther than normal. Due to this laxity one becomes more vulnerable to injury. „
I found out the cause of my aches and pains this week...here are a list of all the symptoms which this syndrome gives me;
*sore joints particularly in my back.
* extremely bendy joints- I have lots of part tricks I show people like my very bendy fingers touching the floor without bending my knees, bending my knees and elbows the wrong way and getting my thumb to touch my wrist
*really soft skin that bruises easily
* I bleed slightly longer than I should
* extreme period cramps
*chronic fatigue, I have to lie down after doing ANYTHING to recharge
* I often feel really dizzy for no apparent reason
* i am very clumsy as I have rubbish spacial awareness
* I have thoratic scoliosis (cure in the top part of my spine)
* extra elastic skin o
I have been visiting a physiotherapist for three months after being referred for sciatic pain in my back and legs which I only brought up to the doctor when I was getting treated for glandular fever, she's bot had much success and the reason why is clear...the joints. In my back like to wiggle about and change position and this causes my pain receptors to be activated my pain. My pain not sciatic as we first thought it is from my joints! I mentioned this to my doctor and showed her my fingers, they have started to appear misshapen and the shape resembles a swan neck, she then commented that if i was bendy age would have suspected that it was hyper mobility syndrome....a few minutes later and showing her numerous bendy things i can do and seeing my soft stretchy skin she deduced this is indeed what I have!
Hype rmobilty syndrome is a connective tissue disorder which in my case is caused by a defect in the collagen. Produced by my body that means all my tissues such as muscles, skin, bowel ect over stretch what they should normally and that this causes pain because my joints are being over worked.
I can help my pain by lying down flat to recharge, usually half an hour help but I get tired very quixkly doing things and this increases the pain I feel. Another way I am learning helps is to stay positive, i am still capable of doing things like working and going to uni even though I am in pain. If I don't keep active it will cause more problems as my muscles will become weak and not support my body properly.
People find hyper mobilty hard to understand, I do not look ill yet I am in severe pain, I am better some days than others. I always remind these people that just because something cannot be seen it does not mean it can be felt and this is the case for pain!
I am looking forward to my appointment tomorrow and hope to learn more information and to start pain relief. I'm upset this won't go away but there is still plenty of sunshine in my life, I've read stories of people who are much worse and I am thankful for my quick diagnosis as I know some people wait years with unexplained pain.
This has recently been re-categorised as elhers danlos syndrome hyper mobility type but is still often referred to as hyper mobility. At my appointment today I seen a different doctor from last Friday who I mentioned to about my scoliosis in my spine, IBS and family history of arthritis and joint pains as well as my stretchy skin (at my last appointment when I first got diagnosed I did not place importance on these) as a result of this I am being sent to a geneticist to check it is definitely the hyper mobility type of EDS I have. I would advise other people with Hyper mobility syndrome to ensure they tell their doctor all their symptoms. You can check if you skin is extra stretchy by pinching and pulling the skin on the inside of your elbow, if it stretches over 1cm this is considerer extra flexible so tell your GP/ consultant as this may be important!
Much love and thanks for reading! I hope this is a useful insight into the syndrome and that if you or anyone you know ever cones across this you can understand that although being extra bendy sounds great, it really hurts!
I've suffered with problems with my joints all my life, but I can't say I'd really thought that much about it, I guess you could say that as I'd grown up with these problems that I just thought that they were a part of life that had to be lived with. However, just recently, these problems have become a major factor in my life, after giving birth to my youngest child, I've struggled to recover and have found myself in continuous moderate to severe pain in most of my joints. During my pregnancy itself, I suffered from severe Symphis Pubis Dysfunction, which resulted in me seeing a physiotherapist, who kick started the process of me being diagnosed with Hypermobility Syndrome, a condition that explained all the problems I have with my joints.
What is Hypermobility Syndrome?
Before I go any further, it would probably be more accurate to ask what are Hypermobility syndromes as there are a number of different conditions that lead to hypermobility, some life-threatening and others not. I personally do not have a life-limiting condition, but suffer from Benign Hypermobility syndrome, so it will be this condition that I will focus on.
Hypermobility in itself, is where the joints are far more flexible than the norm. As a child I was described as double jointed, because I was far more flexible and bendy than anyone I knew (other than in my family). Simply put, what makes a contortionist able to fit themselves into a tiny box is their hypermobile joints. To be diagnosed with hypermobility syndrome, not only does the hypermobility need to be present, but also symptoms such as joint pain and inflammation. In my case I also have very stretchy skin and bruise easily along with weak and painful joints.
There are thought to be various causes to hypermobility syndrome, including the shape to the ends on the bones (with normal joints the ball of the joint fits snugly in the cup of the joint, with mine the cup is shallower than normal which allows the ball greater range of movement). Another possible cause is weak or stretched ligaments due to protein or hormone problems. Although this isn't the root cause of my hypermobility, I do become considerably worse during pregnancy and just before my period. A further cause is muscle tone, I guess this makes sense really, the weaker the muscles surrounding a joint the less stable it will be.
Although there are many symptoms of hypermobility syndrome, unsurprisingly they all relate to the joints. For me one of the major symptoms is joint instability, which leads to me regularly spraining joints (especially my ankle). Other symptoms include early onset arthritis, knee and back pain, frequent dislocations, clicky joints, susceptibility to whiplash and carpal tunnel syndrome.
Hypermobility and Me
Although I don't think there was ever a time when I wasn't bendy, my hypermobility didn't really cause me any problems until I was about 14, when my ankle gave way for the first time. As my ankle joints are looser and less stable than the norm, my ankle will occasionally give way for no apparent reason, with the ankle turning so that the joint touches the floor. This has caused some incredible looking and extremely painful sprains where even the staff at A&E couldn't believe that I hadn't broken a bone. Over the years I've got completely used to this happening, but it can look spectacular as I simply fall to the ground. It was something I warned my partner about, but he was still shocked when it happened for the first time. The days of going to the hospital every time I fall over are well and truly over, and I now tend to self treat when these incidents happen, which is at least every couple of months, but do end up unable to walk for a couple of days each time.
Another time that springs to mind is when I was about 18, working in a supermarket and innocently pushed a box of washing powder across the scanner. I don't know exactly how it happened, but somehow I managed to severely damage the tendons in my wrist, causing severe pain and nerve damage. This incident left me with my arm in a back slab for a couple of weeks, followed by months in a splint, and even with intensive physiotherapy, I still have severe problems with that hand 20 years later, including it regularly going into painful spasms. From that time onwards, I've found hand-writing painful and now will use a word processing program rather than trying to write by hand. Then there was the time...well I reckon you get the picture, for me at least hypermobility means lots of injuries and the thing with these injuries is that they can cause arthritis, and yes I do have mild arthritis in many of my joints, it's not severe but still not pleasant.
Hypermobility And Pregnancy
I'm going to give this a complete section all to itself, because while hypermobility is not in itself a serious risk factor in pregnancy, hormonal changes can worsen any symptoms the hypermobile person is suffering. This is down to the increased levels of the hormone relaxin present during pregnancy, which will soften and loosen joints ready for childbirth. This means that the hypermobile woman is far more susceptible to the painful and debilitating condition, Symphis Pubis Dysfunction (I've previously written about this condition in far more detail), which involves the pelvic girdle and back. The relaxin will also make any susceptible joints even more prone to injury. Personally I suffered from such severe SPD that I could barely move and ended up being induced early. I've also found that I tend to suffer from Carpal Tunnel Syndrome more when pregnant and in the weeks just after the birth.
Others aspects of pregnancy and childbirth that have to be taken into account when hypermobile are the increased risk of premature labour, again I can bare this out, one of my children was born at 33 weeks, although I would say this was more down to the SPD. There is also a tendency to rapid labour, hey as far as I'm concerned this is a good thing, my last labour lasted 1.5hours, and I pushed the baby out very quickly. Other possible problems include a resistance to painkillers and local anaesthetics, pelvic floor problems in later life and perhaps the most concerning is the fact that in many cases hypermobility is inherited from a parent and so the baby has a 50% chance of carrying the gene. (Although remember the majority of people with hypermobile joints suffer few if any adverse effects.) If you are hypermobile (whether it causes you pain or not) it is important to let your midwife know so that they are fully informed and can adapt treatment to your needs.
Hypermobility And Me Pt2
As I said right at the beginning, my Hypermobility is now starting to severely affect me, and is trying it's best to reduce my quality of life. I've suffered so many injuries over the years that my joints are now extremely painful. There are times when the pain in my hips and back makes walking virtually impossible even with a stick. A journey that should take 15 minutes to walk takes me an hour and a half and leaves me in tears. I can't sit in one position for more than quarter of an hour without being in pain and then getting up is painful. I can't raise one of my arms above elbow height without pain, but the worst is the days when I can't lift my baby without crying out in pain. Personally, I'm sure that if the hypermobility had been recognised earlier, then perhaps it would have been managed better and I wouldn't have injured myself as often. But as it is, I'm simply learning to deal with the pain and finding new ways of doing things. No matter what I won't let the pain beat me, and I still go for days out, just making sure I rest regularly and am prepared to be barely able to move the next day.
As far as the pain and new injuries go, I'm well prepared. I have splints for both wrists in case they are injured and tubular bandages ready for sprained ankles. I also take regular painkillers, mostly high strength codeine and Paracetamol, but to be honest I try to take them as little as possible as not only are they addictive but they also give me a rather nasty side-effect. Over the years I've learnt many different exercises to help me strengthen the muscles around my joints to hopefully reduce the number of injuries I sustain. Whether these have helped or not, I can't say, I still have regular injuries but perhaps these would be far more frequent if I hadn't strengthened the muscles. No matter how much pain I'm in, I also keep as active as possible, something that it really important otherwise my joints would weaken further.
Hypermobility And You
If any of this strikes a chord and you believe you may be hypermobile, then your first port of call should be your GP. It took a long time for me to bring up the subject with my GP, and it's definitely something I wish I'd done earlier. Your GP should be able to assess whether or not you are hypermobile, mine only had to look at my hands and the way I can bend my finger tips backwards. Your next port of call will hopefully be a physiotherapist. I've seen many in my life, from the first one who proclaimed I had 'unstable joints' when I was 18 to the latest when I was pregnant and treated me for SPD and hypermobility. It's the physiotherapist that will give you personal exercises that can help increase joint stability. As far as pain goes it doesn't have to be simply lived with, there are various methods of management available from painkillers to supports. The very best pain management I ever had was when my GP surgery included an osteopath, I would be pain free for days at a time after he had manipulated my ankle. But no matter what, I would say that if you are suffering constant injuries then please see someone as by leaving it as I did, can lead to more problems in later life.
As I said before, hypermobility is something that has affected me for my whole life, that fact that something that's only recently been given a name is neither here nor there. As I've never had 'normal' joints I can't really imagine what it would be like not to be able to turn my hands backwards, or touch the base of my index finger with my little finger, even bite my own toe nails (if I wanted to) or get in to postitions that put the Karma Sutra to shame. But at the same time, I can't remember a time that I didn't have to be careful that I don't injure my joints, feel pain when writing for more than a few minutes or my joints randomly click. No matter what it's been called, whether it's double-jointed, unstable joints or as it is now, hypermobility, it's something I've learnt to live with. When I was younger, it was fun to gross people out by pulling my fingers in and out of joint or twisting my arms in funny shapes, now I realise just how much harm I was doing myself, just because you can do something doesn't mean you should. In conclusion, Benign Hypermobility Syndrome is a condition that, while not life-threatening, can cause problems throughout the sufferer's life especially if not correctly managed. So, once more, if you believe you suffer from this condition, do something now, before you get to the point where you're told 'you've simply had too many injuries and will have to live with the pain'.
I am a sufferer of Hypermobility and have been really flexible all my life without knowing what I was doing to my body.
Hyper mobility is a condition where the connective tissues such as ligaments are not as stong and can be extremely strechy and dont protect the joints very well making it easy for people with the condition to substain injury. It can be passed through families or through stress of exercise such as gymnastics, ballet where you really push your body. There is different verisions, some people are just bendy, some are bendy with painful joints or a lot of clicking and some people have it serverly where it can damage internally.
I have danced for many years from the ages of 8 doing ballet, street, tap and modern and more recently pole dancing. During the later years of my short dance career when I was really getting serious and preparing for auditions at dance school to get my professional dancers qualitfications at the age of 16 I was doing a dance exam when the examiner noticed my hip bones poping out during a flexible movement and she stopped the exam. At that moment I dont think I had ever felt so scared, she examined me and asked if this happened often I said yes and thats when it all changed!
My hip bones, shoulder joints, and ankles had been popping in and out for years and I jhad many twisted, strained, fractured ankles and only when I was diagnosed did it all make sense. Popping my hip bones out used to be a party trick, even though it hurt, as a kid it was great to make everyone groan in disgust!
Looking back at activities in my life things begin to make more sense, when I was swimming as a child breast stroke used to be a chore because I could never turn my hips out properly to do the stroke. When I had growth spurts at the age of 11-12ish I could never walk long distances without terrible pain in my hips and a horrible clicking feeling in them.
When the examiner stopped the exam and explained what she thought was going on at the age of 16 I thought I was untouchable and thought my dance career was ahead of me. So I honestly didn't believe anything could be wrong, I knew I clicked and my joints popped in and out but I never imagined this was a real problem.
I went to the doctor a few days later, was referred over and over to access the extent, it wasn't good. I was advised to stop dancing and had to go physio sessions all the time. I know it sounds silly at such a young age but my dream of being a dancer something I had wanted forever had disappeared so quickly but I am pleased to say I picked myself back up again and channelled my energies elsewhere.
There is life after being dignosed just careful, I tried dancing again do street and pole but it was more of a painful reminder and too soon for me. I now swim and take step aerobics class.
I have to be careful with what I do and there are more complications as you get older, but this could be so so so much worse. My life is not in danger, I still have my spirit, determination and drive. Any young girls or boys or adults out there with this condition just concentrate on looking forward, looking after yourself and enjoying everything you have.
I wish i could give this condition 0 stars because it really hurts!
Hi Tracy, I have just joined today so I can thank you properly. This information was so useful to me. I'm going in for plastic injections in my spine and sacroilliac joints on Saturday. I've been so worried about having the procedure and feel that I need to know why I am in such pain and you have explained everything so well, I am sure I have hypermobility syndrome. I've always been bendy and double jointed since a child especially in my fingers and elbows. When I was a kid, I used to flip my hips out of joint when doing the splits, and now I can see why that was sooo wrong with hindsight.Thanks so much Tracy, I'm so glad I'm not alone but so sorry you suffer so badly too.HugsEmma xxx
I am a sufferer of hypermobility syndrome and it is very painful. People with hypermobility have weaker connective tissue such as ligaments that allow joints to go beyond their normal range of movement which in turn causes inflammation around the joints and the muscles to become overworked. Because we have no idea of the normal range of movement we also lose our sense of position which is called proprioception.
The usual method of determining if someone has hypermobile joints is the Beighton score which involves checking if you can bend over and touch the floor with the palms of your hands without bending your knees, checking elbows and knees for hyperextension (bending backwards) and fingers for excessive movement (towards the hand and the forearm). This of course isn't totally reliable as you can have hypermobility in other joints and not the ones they test.
There are varying degreees of hypermobility and some people have it wthout pain, others have it with pain and some have severe cases that lead to problems with the internal organs. I fall into the second category.
I have hypermobility in the shoulders, one sacroiliac joint (the joint that joins the pelvis to the spine), one hip, both knees, both elbows and one ankle. I was always very flexible as was my Mum and had no idea I had hypermobility syndrome until my sacroiliac joint began to get painful.
When the joints move too far the muscles surrounding the joint become overworked, as they get completely over-loaded another set take over then they become over-loaded and another set step in so it can spread from head to toe because the muscles can't cope without the help from the ligaments.
Ligaments secure a joint and stop it moving excessively, this is called form closure. The muscles compress and secure the joint to keep it stable and this is called force closure. Due to the lack of form closure and the muscles becoming overworked so therefore a lack of force closure too people with hypermobility cannot stabilise the joints.
The pain from hypermobility is constant, usually better after rest and progressively worse as the day goes on and the joints move too much. Unlike typical back problems etc it does not get better with activity because we move wrong. Hypermobile patients usually have impaired motor control because of this loss of support around the joints so each movement aggravates the problem further.
The muscles get full of knots and trigger points from repeated overuse so they in turn cause their own pain and stretching must not be done around the unstable joints.
Hypermobility does seem to be inherited, I can think of a few family members who have joints that move too far, once you know how to spot them you can tell easily.
I was diagnosed by a chiropractor when I sought help for my back problem and she just looked at my knees and elbows then my back and said I was way too flexible. The solution of course is not to have repeated mobilisations of joints but to work on stabilising them.
Pilates is one of the best forms of exercise for hypermobility as the pilates method teaches patients to keep the joints in a neutral position and work on stabilising them there. It also addresses motor control which is vital so you actually know what your joints are doing and can avoid excessive movement.
Another treatment is prolotherapy which is where an irritant is injected into the ligaments to create inflammation and the hope is they will heal with the joint in place and become useful again. It's not foolproof though as if the joints move too far when undergoing treatment, let's face it a course is several weeks so hypermobile patients are bound to move too far in that time, the ligaments heal in a faulty position and it doesn't help at all. It is also not available on the NHS for ligament treatment and a course can run into hundreds of pounds with no gaurantees it will work.
The majority of people don't really understand hypermobility and can't see what the problem is as most people strive for flexible joints. Again as patients are not restricted in movement many people think there's nothing wrong but of course they don't feel and can't see the pain with every movement.
It's a very painful condition that can restrict the patient in many ways and obviously has no cure so it is always present. The best way to deal with it is to strengthen the muscles far beyond "normal" and make sure they are in balance so they don't pull the joints out of alignment.
I'm giving this one star only because I have to rate it, it's a very painful condition that deserves no stars.
Thanks for reading.
***WHAT IS HYPER-MOBILITY?***
Hypermobility describes joints that stretch further than normal. For example some Hyper-mobile people can bend their thumbs backwards to their wrists, bend their knee joints backwards, or put their leg behind their head. It can effect a single joint or multiple joints throughout the body.
The condition tends to run in families, suggesting that there may be a genetic basis for at least some forms of hypermobility. The term double jointed is often used to describe hypermobility, however the name is a misnomer and is not to be taken literally, as an individual with hypermobility in a joint does not actually have two separate joints where others would have just the one.
Some people have hypermobility with no other symptoms or medical conditions. However, people with hypermobility syndrome may experience many difficulties. For example, their joints may be easily injured, be more prone to complete dislocation due to the weakly stabilized joint and they may develop problems from muscle overuse (as muscles must work harder to compensate for the excessive weakness in the ligaments that support the joints).
Hypermobility generally results from one or more of the following:
* Misaligned joints
* Abnormally shaped ends of one or more bones at a joint.
* This can also run in families which suggests there may be a genetic basis for some forms of Hyper mobility (although no-one in my family has ever been diagnosed with this!)
* It has also been associated with chronic fatigue syndrome and fibromyalgia.
Symptoms can include:
A dull but intense pain around the knee and ankle joints and also on the soles of the feet.
(I used to experience pain around my ankle joints when I was at work but never put it down to anything as I was on my feet all day)
***GETTING DIAGNOSED - MY EXPERIENCE***
Ever since I was younger I noticed me elbows bent a bit funny and a bit further than normal, but I didn't think anything of it, I just thought I was bendy!
I'm now 23 yrs old and I went to pick something up from the shop floor which was quite heavy 9I was using my manual handling training), so I was lifting correctly!
Soon after that I started to get a clicking/cracking noise in my back and it became quite uncomfortable & the noise of my back cracking was quite worrying.
About 3-4 weeks later I went to see my GP and she referred me to see a physiotherapist up my local hospital.
I did some exercises with the Physiotherapist so he could determine what was wrong with me and where the problem was.
The problem was indeed in my lower back where I was experiencing the clicking/cracking noises and sensations. He also got me to do a number of things such and bending my thumb towards my wrist and some other exercises which told him I had hyper-mobility!
He applied pressure with his hands to the painful areas to try and ease the pain (or blockages as he said!), I'm not going to lie . . It REALLY HURT!
He printed off some exercises for me to do twice a day and I booked another appointment for the following week.
The following week I saw a different physiotherapist and he got me to do some exercises as well. He could see straight away that I had flexible joints as when I sit down and lean back on my arms you can see that my elbows are very bendy.
He talked about the muscles and joints in the bottom of my back and using a dummy version of the back he showed me where the problem was and what was happening.
He also relived some of the pressure/pain in one of my buttocks and this time it hurt even more. I've never experienced ANY pain like it before and I've had 2 tattoo's done and that hurt!!
After this session I was extremely sore and aching! I'm still having physiotherapy now, and its been 5 weeks now. I have good days and bad days. Sometime I'm in agony with it, and the pain makes me feel very sick.
I was prescribed some pain-killers and anti inflammatory tablets which I have to take twice a day but I have experienced side effects and I have not been able to sleep very well!
I was also given a support belt which I had to wear for 24hrs which admittedly did help my back out and I did experience less pain when I wore it, but because you have to wear it so tight, when I took the belt off I was actually quite sore and my hips were sore and looked slightly swollen from it, this lasted for about 4 days after taking the support belt off!
***CHANGES TO MY PERSONAL LIFE-STYLE***
I changed my job about 5 weeks ago anyway, as I wanted a career change from retail. I have an office job which of course involves sitting down all day. I have to take regular breaks from sitting down.
I used to go running once a week and I have now had to stop this, I had to do sports such as swimming and Pilates. I also haven't been able to do any sit ups for about 2 weeks which came as a huge shock as I try to do at least 100 a week!
I have to do 7 different stretching exercises twice a day, which means getting up earlier to do them and then going to bed slightly later in order to complete them twice a day!
I love clubbing and have always been the first one of the dance-floor and that's where I'll stay for most of the night. The first time I decided to go clubbing after being diagnosed I was in agony! The following morning after my night out, every time I moved it was very uncomfortable and painful.
I am still having physio now which costs me £40 for a half hour session which is pretty expensive if you have to go every week like me. If you get referred by the NHS, like me, you get 5 sessions free, then you have to start paying. Obviously prices may vary!
Hyper-mobility can be very painful to some of your joints, I have experienced very bad pain in the bottom of my back with an unpleasant clicking/cracking sound every now and again which is so loud someone sitting 3 feet away from me can hear it!
Your Nurse/GP may prescribe some pain-killers for you which will more than likely also be an anti-inflammatory!
1) Medications frequently used to reduce pain and inflammation caused by hypermobility include analgesics, anti-inflammatory drugs, and tricyclic antidepressants. Some people with hypermobility may benefit from other medications such as steroid injections or gabapentin, a drug originally used for treating epilepsy.
2) Heat - The application of local heat such as hot water bottles, heat rub creams, etc maybe soothing.
3) Stretch - Performing regular stretches may help to relieve pain. (You physic may give you some stretch exercises to complete every day).
4) Splints/Supports - Splints, Casts, Supports and Belts can be used to help reduce pain for knee's elbows and back pain.
For many people who suffer from Hyper-mobility their lifestyle changes can decrease the severity of symptoms.* If you write a lot, you may find typing easier and less painful.
Avoid over-stretching joints. Just because you may be able to stretch further than other doesn't mean it's a good idea to!
Watch your posture to ensure you are sitting/standing up straight. Weakened ligaments and muscles contribute to poor posture which may result in numerous other medical conditions.
I have also been told to stop doing sports such as running and sit ups. I have been told by my physiotherapist to do sports such as Pilates, Swimming and other sports like Tai Chi!This is always going to be a permanent problem which won't go away. The physiotherapist can try to ease the pain and help as much as they can but that's all they can do!
If you are hyper-mobile it can be more difficult keeping fit as there is a greater risk of injury and you may find exercising quite painful.
To improve your fitness you need an exercise programme that addresses all the areas of fitness. The exercises need to be specific to meet your needs. Your exercise programmed should be performed at least 3 times a week. This should also be monitored regularly. A good exercise programme should include the following.
Posture - Good Posture reduces the stress placed on joints, reducing wear and tear. It also improves the available range of movement of joints, which help to maintain normal joint range and muscle length.
Breathing - Physiotherapists and other health professionals use breathing techniques to help reduce pain.
Aerobic Conditioning - Being aerobically trained helps to, regulate hormones and blood sugar levels, improves the endurance capacity of muscles including the heart, aids digestion and improves circulation of oxygen and nutrients to the body.
Muscular Strength, Power Endurance - These exercises help the muscles to provide sustained support for the spine and other joints.
Flexibility (Stretching) - These help to maintain consistent muscle length and maintain joint range.
Positive Attitude & Diet - Staying positive and committed when you are in pain is very difficult. It is advisable to eat a healthy balanced diet. Your diet has a very direct and powerful effect on your health.
REMEMBER - The person who should advise you on what exercises to do and how much should be your physic-therapist. If you are unsure of anything its always best to ask as you don't want to do yourself more injury!
There is plenty of information available online about Hypermobility and there are also groups you can join. I was surprised at how many other people also suffer from this problem, some worse than me! There is a special group for Hyper-mobility which is www.hypermobility.org
Hyper-mobility can be very painful and it can get you down sometimes. Although people may think its pretty wicked to see how far you can bend your joints, don't risk showing them as you may be doing more damage to your joints than you think.
Stick to your exercise programme your Physio gives you and try to keep committed and think positive.
I'm not finding coping with this very easy as I can get comfortable sitting on the bus or when I'm on the train. I am constantly moving around every 5/10mins trying to get comfortable, people must think I'm a right fidget!
I had a photo-shoot a few weeks ago now and I never realised until I looked at the pictures that you can see how flexible my joints are. You can see how much my elbows bend and it doesn't look particularly pleasant!
Many Thanks for Reading I appreciate all your ratings and comments.
I had my last physio sessions last week (this was the last of the free sessions on the nhs, so it was my 5th session).
The physio said he could book me in for more physio sessions but he thought it may be a good idea the wear the support belt for a month and see how I get on with it. He said that no doubt in the future, maybe a month or so I may get refferred back to the physio again.
He also told me it was important to wear the belt for a month and do the exercises he gave me every day (first thing in the morning is better), wearing the support belt. He also told me that if I needed to take my prescribed anti-inflammatory/painkillers then do so.
The physio also mentioned it was important to do the exercises to strengthen the muscles around my pelvis as in the future when/if I decide to have children this may cause problems.
The Physio said although the pain may go away for a while and may feel like its got a lot better, the problem will still always be there and won't ever go away as its a permanent problem.
(Review also on ciao)