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Jess 18 with pcos (my story so far)
Polycystic Ovarian Syndrome
Member Name: junior_j
Polycystic Ovarian Syndrome
Advantages: You learn to deal with it
Disadvantages: various symptons
Well , what can I say about Pcos (polycystic overian syndrome.) It all started not long after my tenth birthday. I remember being at home and going to the toliet to discover that I had started my periods. After running in the living room shouting oh no look am I going to die my mum calmed me down explained some stuff and got me sorted. At that time I was underweight and under height for my age. After having my first period for 2 weeks and quite heavy my mum took me to the gp who said although it was uncommon to start heavy periods it was not a huge problem. Within two months of starting my period my weight ballooned despite no changes to my eating or exercise patterns. I was suddenly having to get clothes 1-2 sizes bigger for me then normal along with wearing sanitary towels and having horrible cramps every month. After 4 months of heavy periods and increased weight and 3 of 4 visits to the gp with "children often gain weight during growth spurts" and "keep making sure she does exercise and eat less bad foods" my mum done some "googling" heavy periods , unexplained weight gain kept making Pcos pop up. Mum even brought a book or two on it. She finally went to the gp with page fulls of printed evidence from the net and spoke to him about he finally agreed (i think to keep her quiet) to send me for a scan. I went for a scan and instantly the person doing the scan was able to show us (me and mum) the multiple small cysts on my right ovary. I was then refered to a gynecologist who done bloods and confirmed I did have pcos . My level or testosterone was elevated the scan confirmed it I also continued to gain weight. I was told there was not much they could do but the best thing was to keep my weight as low as possible. Being 10 and half and being on your periods having scans and blood tests being very confused was hard enough let alone being restricted with food which in the past was never a huge problem was quite hard but I dealt with it with support from family and friends. Just after my 11th birthday I could barely walk from the cramps in my lower right belly , i was vomiting and rolling about in pain , my mum called the doctor out who called an ambulance thinking it might be appendicitis I spent the next 4 days in hospital on a childrens ward (Where staff knew barely anything about pcos) on morphine and having scans and blood tests. My ovary was just swollen and it was a very pain ful period. After that my gp and gyno decided going on the pill was the best bit , northesterone work ed for a short period of time and since then to now (just turned 18) I have jumped from different strengths of northesterone to the mini pill to micro pill to the depo injection and all have worked for short amounts of time before being fairly ineffective. Pcos has caused me become obese , be extremely hormonal , have 2 more hospital stays with pain ful periods and ovaries and loss of blood . Some people can also suffer with excess hair , acne , depression and infertility right now i do not think about weather i can have kids or not in the future so many people with pcos do have children and some struggle but I am too young to worry about this yet. I am now taking 3 northesterone a day to help with my periods but i know its some thing i am going to battle with for quite some time. Doctors find it quite hard to deal with the condition because of what they know and because of my age. I use various support forums on the net to talk to other people with this condition , i take co-codamol on prescription for the pain from my periods. As the years have gone by i have changed to doctor who really seems to care want to help. I am waiting to be re-refered to another gyno who may be able to help now i am a bit older. Pcos does not have to take over your life. If you can control it with the help of your doctor and things you can do yourself like keeping your weight down ( i am now at slimming world) taking your pill (if you take) at the same time each day and generally look after your self then you can manage with this condition. I have managed I work full time now at a nursery and go to college some times its hard and stress full especially as my periods can last upto a month at a time or more but you do learn to deal with it I hope people can read my story and realize even at a young age it does happen and you do deal with it its not some thing you need to be frightened about if you have it. Also not every one has the same symptons to the same degree if at all with PCOS i know a couple of people who are underweight with normal or no periods with PCOS it have a variety effect on everbody. Just because i suffer with my periods and weight does not mean some one else with pcos will , they might no have it , they might have it worse you just take a breath do your re search and find what works best for you. Thank you for reading my story!
Summary: not a nice condiiton to have but you can deal with it and control it
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