â€œ AYME(pronounced Â‘aimÂ’) is the largest charity for children and young people with ME/CFS, with over ten years of knowledge and experience about how this illness affects children and young people. We know how important it is to have good, understanding friends, which is why AYME offers lots of friendship-supporting services like an online community, pen pals, e-mates, buddies and local get-togethers, all run by other young people with ME/CFS. They are all under 26 and have probably been through similar situations as you. Members get a bi-monthly magazine packed with young peopleÂ’s news and views. You can choose to get involved or just enjoy reading and listening to what others are getting up to. â€ž
AYME pronounced "aim" is a charity set up to help children and young people up until the age of 26 who live in the UK and who are suffering from ME (Myalgic Encephalomyelitis)/CFS (Chronic Fatigue Syndrome) which is also known as CFIDS (Chronic Fatigue and Immune Dysfunction syndrome ) in America.
The AYME website is very informative, with information which is relevant to young people and their families no matter how long they have been ill for. There is a "newly diagnosed" section which was the first thing I ever read after being diagnosed myself.
Not only is there information covering a wide range of subjects but there are details of places of support and a helpline (which I know from personal experience does actually help).
The tag line of the site is "Join AYME for friendship and support" and it does exactly that. The lifeline is throws young people with ME is invaluable and gives them the chance to make friends, not just people to talk to about their condition but life long friends who understand the up's and downs that navigating life with a neurological conditions throws at you.
I urge anyone to go onto the site and learn more about ME, its very misunderstood and us sufferers would really appreciate it if people took 5 minutes to read about our condition, and if you have it yourself, are under 26 and live in the UK think about joining (its free), you won't regret it :)
Membership is free